About Ethan
- Sharon xx
- This is Ethan's story. The story of a little boy who is very much loved. He's a sports mad, outdoor loving, walking miracle. He's cheeky and funny and just full of life. Here we hope to share his progress and development with updates and photographs. The older posts show pictures of Ethan from birth with the most recent being of him today so if you want to see him grow before your very eyes start at the bottom and work your way up.....
Friday 6 April 2012
Sharon's Blog link..
Thursday 25 March 2010
Way overdue an update....
Sunday 9 August 2009
Double Celebration!!
The actual moment of baptism ~ I have to admit to a few tears at this point. Does he look gorgeous or just really gorgeous??
Ethan holding his beautiful Baptismal candle ~ I'm just making sure he doesn't singe his eyebrows lol.
Ethan with Mike, Nicola and Millie ~ my lovely babies!!
Ethan ~ aka Ben 10 ~ very tired but very happy at the end of a lovely day!!
Wednesday 1 July 2009
School Visit....
I was mighty proud of myself at pick-up time when his teacher Mrs M told me that although he is the only child in the whole of his year who's not done pre-school it doesn't show in the slightest and if I'd not told her then she'd never have known. So I must have been doing something right for the last 15 months or so. Home education has been a delightful way to spend another quality year with Ethan and I'd fully recommend it to anyone who has the time, money and opportunity to do it.
We went to McDonalds to celebrate on the way home, well, you have to really don't you?? Photo's to follow when I've downloaded them........
Not sure quite what was so funny lol....
....and not sure quite why he looked so grumpy either.......
Er now then, what pose shall I strike ~ ah yes, my arms flying at the back like superman, that'll be the one....
Friday 5 June 2009
An Update...
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Thursday 5 February 2009
Hannah.....
In case you're wondering Ethan is wearing his sleep suit as this is taken first thing in the morning. He's never taken to those sleeping bag type affairs that do look ideal. He doesn't like his legs being restricted. So, I managed to find sleep suits to fit his size in Mothercare and he stays lovely and cosy all night even if the covers come off.
Christmas 2008...
Ahh yes, he also got a parachute which has given us hours and hours of fun. A very cheap gift and very good for imaginative games. He loves it. No, I hadn't had enough and tied him up for some peace and quiet he's just lying wrapped in it!! No, honestly he is hehe!!!
Here he is with me, I look fairly ok for a rather stressed 45 year old mother of six on Christmas day but Ethan looks like he's been on the wacky baccy ~ mad staring eyes, dilated pupils, fixed inane grin. All scary stuff. Simon reckons it was photographic pressure, his smile had been overworked from too much posing!! "Smile for the camera Ethan." Not his cutest look in my opinion but hey, he was excited!!
Friday 19 December 2008
Preparing for Christmas
Ahhhh now we've collapsed into a mass of giggles. Goodness knows what Ethan was doing at this point but he did a great job of centering us even if he did catch us looking rather bizarre facially [who said 'no change there then'?? - cheek lol]
Home Schooling fun....
Soccer for Tots - Autumn term '08
Tuesday 16 December 2008
A little gem......
Just love him xx..
S xx
Consultant appointment...
Also sitting like this is linked to Autism and he asked questions related to that but you don't have to be a brain surgeon [nor a consultant ;o)] to work our that Ethan isn't autistic.
We have to go back in three months to see if there's been any changes. In the worst case scenario Ethan would have to have corrective surgery to reshape the heads of his femur's where they sit in the hip socket to stop the twisting but I really don't think that's going to be the issue or at least I hope not. That's not the impression Mr K gave at all. I think the three month follow-up is just a precaution to be honest.
I have to just say that part of the examination involved Ethan lying on his tummy whilst the Mr K put his legs into the 'W' position - it looked absolutely gross. He couldn't quite believe how supple Ethan is and said he could actually have pushed the legs further if the bed hadn't been stopping him. Ethan looked like a squashed frog with his knees virtually under his armpits and his hips folding the wrong way. I thought he'd complain at this point but no, he's just so bendy but it was a bit yuk to watch. Eeeeewwwww!!!!
As we left Ethan waved and said 'Thank you Man - bye' - I could hear him chuckling as we walked down the corridor. Too cute!!
Photo's still pending but closer than before cos I now have batteries for the camera. I just need some time to fiddle around putting them on.
Happy Christmas all and every blessing to you for a peaceful and enjoyable time over the holidays.
Sharon and Ethan xx
Thursday 6 November 2008
Date for the consultant......
Many thanks
Sharon and Ethan xx
Wednesday 5 November 2008
Hearing Assessment.....
We [Dave and I - he came with me for moral support and to pay for lunch ;o)] then took Ethan to Activity Land for a good play session. Then onto Mc D's for lunch - did I mention that Dave paid lol???
Home now and Ethan's crashed on the sofa watching something mindless on TV for a while before he gets his second wind and starts playing again. No plans for tonight as Ethan's still scared witless of fireworks so today will pass by unnoticed in this house.
I will keep everyone posted about his legs. I do have some photo's to post but the camera batteries have died so I can't upload them until I've bought some more - sigh!!! Must do that soon....
Hugs
S xx
Sunday 26 October 2008
Small update....
I'll let you all know....
S xx
Monday 20 October 2008
Minor health issues...
Also Ethan has sat in a 'W' position ever since he could choose his own position to sit in. Now, I have seen a few other children sit like this occasionally but Ethan would really prefer to sit like this all the time. This position is connected with Autism as it's linked to low muscle tone which Ethan obviously does not have. He also cannot sit still 'normally' on the sofa for any length of time without fidgeting or readjusting is position almost every minute. As he's got older the 'W' position has become more exaggerated and alot wider rather than tightening up with age as I would have expected it to. He also complains of quite bad pain when he's sitting normally especially when on someone's shoulders or in a supermarket trolley where he's 'forced' to sit feet forward and lower leg hanging down - the pain is so bad that once you place him back on the floor he actually can't walk for a few seconds. On discussion with our health visitor she suggested a visit to our GP which we've just done. The upshot is that he doesn't feel it's anything too serious but agrees that Ethan is in deffinitely in pain when sitting normally so we're down for a visit to the consultant paediatrician within the next 6-8 weeks or so just to check that we're not missing anything. I suspect some physio at worst, let's hope and pray that I'm right.
Hugs to all. Have some more photo's to post soon so watch this space..........
Sunday 12 October 2008
First Official Engagement....
Anyhow here they are. You can see just how wonderful and sunny it was.
He wasn't at all sure about ol' "Magic Dave" and retreated to the very back of the group of children to watch from a safe distance on daddy's lap........
......after a while though he started to get a bit braver and here he is craning forward to see better and he's clapping along and shouting out the answers with the other little ones......[Er Simon - is that a beer I see in your hand???]
.....here is "Magic Dave" in action. He really was very good and threw a bit of inuendo in for us adults. We were very sure that Dave worked part-time for ASDA and was infact moonlighting - isn't that an ASDA uniform he's wearing?? We did take the micky - poor guy!! Ethan is sat just out of picture to the right on the sun bed with Simon......
Here he is at last sitting at the back of the crowd on Daddy's lap and in fact sat on his own for the very end. He really enjoyed the show and went to bed clutching his signed photograph of Daisy the Super-Cow [don't even ask].
Finally, here we are with an 'all-action' shot at the end of the afternoon. All the older lads started playing footie and this is Ethan just about to boot the ball. He was really quite good at taking turns and his dribbling skills have come on in leaps and bounds so the Soccer 4 Tots is obviously paying off. He had just the best time and really found some courage to face a few things that normally rock his boat a bit.
Monday 29 September 2008
IT for tots.....
Personal Awareness....
He also managed to do some cutting out today and did the best he's ever done using his little scissors with only the minimal of help. I had the outline of some shapes for him and he managed to cut out a recognisable square, circle, rectangle and triangle. He already knows all the basic shapes but it was a really good exercise in using scissors which is really tricky when you're little.
We're still looking at our Autumn project but I've had difficulty finding many resources that don't involve colouring/painting which are great but have a limited teaching ability. He's very much a kinesthetic and visual learner so it takes something quite hands on to keep his interest. Books on the seasons seem to be as rare as hens teeth. We're going on an Autumn walk with MKhen in Ocotober so with any luck we'll come back from that with some things we can use. Our trip to Willen Lake Park was good for talking about Autumn and looking at the leaves, trees and seeds [conkers, acorns] but not much to actually bring home and record. Trips out are great but until Ethan can actually draw recognisable things and write a few basic words recording them is going to be tricky. It will all come in time and he's really enjoying what we're doing at the moment.